Just when we were starting to be confident about Ava's recovery, we've been thrown another curve ball. Yesterday, Ava's blood pressure started to skyrocket out of the blue. They are trying to determine the cause – looks like maybe it is a small clot in the aorta near the kidneys. Other common causes for this sort of thing could be something to do with her heart or brain (early indications are that these are not the culprits, which is good, but we’re still waiting for comprehensive studies to be done). She was transferred from Good Samaritan Hospital in Los Gatos to Lucille Packard Children's Hospital at Stanford last night (Stanford is no stranger to us and it is a great hospital, but it is a 1/2 hour away as opposed to 2 minutes, which will make all this coordination even tougher). Ava is very stable and they are controlling her blood pressure with medication which they search for the cause. She is in for a new round of tests today.
We are really hoping this is something minor and simple to fix…. This continues to be quite the rollercoaster. We got a really good feeling about the Stanford NICU tonight (they actually asked me if I wanted to breastfeed when we got there!), but it will make it all the more tough to do this back and forth thing with all of the driving, etc. And, of course, the really hard part is that we felt like she was on her way to recovery and was doing so much better, and now we have another bump. More later…
